Operation Rescue: Yulia

Here is some information on her condition

Cockayne syndrome (also called Weber-Cockayne syndrome, or Neill-Dingwall Syndrome) is a rare autosomal recessive^[1] congenital disorder characterized by growth failure, impaired development of the nervous system, abnormal sensitivity to sunlight (photosensitivity), and premature aging.^[2]:575 Hearing loss and eye abnormalities (pigmentary retinopathy) are other common features, but problems with any or all of the internal organs are possible. It is associated with a group of disorders called leukodystrophies. The underlying disorder is a defect in a DNA repair mechanism.^[3

 

One online support group for this condition can be found at http://www.amyandfriends.org/index.htmlhttp://www.amyandfriends.org/index.html 

 

Julia is a beautiful little girl, and if she has to pass early, it should not be in the dark confines of a crib, alone and with no one to care whether she lives or dies.  Adopting Julia would be a true leap of faith, and a gift to her, just as it was for Chrissie Patterson.  My prayers for this little girl!!

 

.

Julia is another sweet little girl stuck in a "laying room".   She has sandy brown hair and big brown eyes, and so longs to have a life outside the 4 walls of this crib.   Her medical records indicate CP, strabismus, and something called Cockayne Syndrome.  CS is a premature ageing disorder that leads to a shortened life expectancy.  There are varying degrees of this syndrome and there are types I, II and III.

Yulia, a young, beautiful, sweet, "special", orphaned little girl. She is still to find a family and NEEDS PRAYERS. She is only 2 years old, born "early" in 2008. Yulia is listed under "Other Angels" and you can also go to Reece's Rainbow to donate, but it may be easier to do that here :) These are the photos and info on little Yulia. 
Please pray!!!!